What happens at one of the world's largest rheumatology conferences, and why should patients care?

In this special episode of The Health Advocates, Steven Newmark is joined by Dr. Shilpa Venkatachalam, Director of Patient-Centered Research at the Global Healthy Living Foundation (GHLF), to discuss the biggest takeaways from EULAR 2026, the annual congress of the European Alliance of Associations for Rheumatology.

The conversation explores why conferences like EULAR are so important for advancing patient care, how researchers, physicians, and patient advocates work together to shape the future of rheumatology, and why the patient voice has become an essential part of medical research.

Steven and Shilpa also highlight GHLF's contributions to this year's conference, including two original research posters examining barriers to the early recognition of hidradenitis suppurativa and the unmet informational and support needs of people living with Sjögren's disease. Along the way, they discuss exciting emerging trends in rheumatology and clinical care, especially the increasing emphasis on patient-reported outcomes.

Whether you're living with a rheumatic disease, caring for someone who is, or simply interested in the future of healthcare, this episode offers an inside look at how today's research is helping shape tomorrow's treatments—and why patient perspectives are more important than ever.

Access the GHLF HS Diagnosis Accelerator: https://ghlf.org/hscheck/

Contact Our Host

Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org

A podcast episode produced by Amelia Violet Prouse, Associate Podcast & Video Producer at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Listen to all episodes of The Health Advocates on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

What actually happens at a major international medical conference — and why should patients care?

In this episode of The Health Advocates, Steven Newmark reports from EULAR 2026 in London, one of the world’s largest rheumatology conferences, to explain how meetings like this help shape the future of patient care. The episode explores why conferences matter not just for doctors and researchers, but for patients and advocacy organizations as well.

Steven discusses how practicing clinicians learn about the latest medical advances, how researchers connect directly with physicians treating patients every day, and why organizations like GHLF play an important role in bringing real-world patient experiences into scientific and medical conversations.

The episode also highlights several emerging themes already generating excitement at EULAR this year, including the growing role of artificial intelligence in rheumatology and the potential future of CAR-T and cell therapies for autoimmune diseases like lupus and rheumatoid arthritis.

Most importantly, the conversation explains how scientific innovation ultimately connects back to what matters most: improving the daily lives of patients.

Contact Our Host

Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org

A podcast episode produced by Amelia Violet Prouse, Associate Podcast & Video Producer at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Listen to all episodes of The Health Advocates on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.

Something bigger than a single vaccine debate is unfolding inside America’s public health system.

In this episode of The Health Advocates, Steven Newmark explores the growing tension surrounding vaccine policy, scientific transparency, and public trust. From the FDA’s decision not to review a new mRNA flu vaccine application to reports of delayed vaccine safety studies and shifting federal recommendations, the episode connects a series of recent developments that together point to a broader transformation inside federal health agencies.

The conversation examines why some officials argue these changes are restoring scientific rigor, while many scientists and public health advocates worry they are creating confusion and weakening confidence in vaccines. Most importantly, the episode focuses on what this means for patients trying to navigate healthcare decisions in an increasingly uncertain environment.

Contact Our Host

Steven Newmark, Chief of Policy at GHLF: snewmark@ghlf.org

A podcast episode produced by Amelia Violet Prouse, Associate Podcast & Video Producer at GHLF.

We want to hear what you think. Send your comments in the form of an email, video, or audio clip of yourself to podcasts@ghlf.org

Listen to all episodes of The Health Advocates on our website or on your favorite podcast channel.

See omnystudio.com/listener for privacy information.