Finding Resilience Through Rare Blood Disorders ft Brandi Lewis cover art

Finding Resilience Through Rare Blood Disorders ft Brandi Lewis

Finding Resilience Through Rare Blood Disorders ft Brandi Lewis

Listen for free

View show details
In this episode of Resiliency The Podcast, we welcome Brandi Lewis — blood disorder educator, TEDx speaker, writer, podcast host, and founder of a nonprofit supporting blood disorder patients facing financial hardship.At just 19 years old, Brandi was diagnosed with aplastic anemia and PNH, rare blood disorders that changed the course of her life. What began as a devastating diagnosis became a calling. Brandi turned her pain into purpose by helping register hundreds of potential bone marrow donors and supporting patients navigating similar journeys.Brandi shares what it meant to pause her college dreams, face uncertainty, learn “the art of rest,” and discover that resilience is not something we do alone. Her story is a moving reminder that community, advocacy, patience, and storytelling can become life-saving forces.In this episode, we explore:00:00 — Welcome to Resiliency The Podcast 01:27 — Meet Brandi Lewis 02:00 — What resilience means to Brandi 03:09 — Life before diagnosis and asking “Why me?” 05:33 — What the pause taught her about rest and success 07:00 — Creating a nonprofit while still sick 08:48 — How donor registration efforts helped save lives 10:09 — Addressing the bone marrow registry gap for African-American patients 13:32 — Overcoming financial and community-building barriers 17:25 — How Brandi balanced rest, advocacy, and action 20:14 — Facing relapse and choosing to fight again 24:06 — Why resilience can look like crying on the couch 25:56 — Navigating frustration, inequity, and self-advocacy 29:05 — Brandi’s podcast, The Life We’re Given 33:14 — Why sacred conversations matter more than numbers 37:25 — Brandi’s question for a future guest 38:22 — When resilience becomes a group effort 39:42 — Where to find BrandiAbout Brandi LewisBrandi Lewis is a blood disorder educator, TEDx speaker, writer, nonprofit founder, and host of The Life We’re Given. After being diagnosed with rare blood disorders at 19, Brandi became a passionate advocate for patients, donor registration, and the power of community-centered resilience.Learn more about Brandi: Website: https://brandilewis.com/LinkedIn: https://www.linkedin.com/in/brandi-lewis/Podcast: The Life We’re Given — available on all podcast platforms https://brandilewis.com/podcast/About Resiliency The PodcastResiliency The Podcast is a global conversation with leaders, investors, creators, and everyday changemakers aimed at redefining resilience in today’s ever-evolving world.Hosted by Jenn Quader and Dr. Kelly Culver, each episode offers stories, strategies, and inspiration to help listeners embrace change, overcome challenges, and find strength through community.🔗 Resources & Links: Check out the RTP shop! https://allcreates.myshopify.com/ 📲 Follow the RTP! - https://resiliencythepodcast.comhttps://www.facebook.com/profile.php?id=61562977084612 https://www.instagram.com/resiliencythepodcast/https://www.linkedin.com/company/resiliency-the-podcast https://www.youtube.com/@ResiliencyThePodcastg Follow Jenn Quader: https://www.jennquader.com https://www.thesmartagency.comFollow Dr. Kelly Culver: https://www.culvergroup.caPlease like, subscribe, and share this episode with someone who needs a reminder that resilience is not a solo journey.#ResiliencyThePodcast #BrandiLewis #RareBloodDisorders #AplasticAnemia #PNH #BoneMarrowDonor #Resilience #Community #PatientAdvocacy #TheLifeWereGivenDISCLAIMER: THE OPINIONS OR VIEWS EXPRESSED DO NOT NECESSARILY REFLECT OR REPRESENT THOSE OF THE HOSTS OR RESILIENCY THE PODCAST; SUCH VIEWS ARE MERELY OPINIONS EXPRESSED. THE INFORMATION IN THIS EPISODE IS FOR PERSONAL USE ONLY AND GENERAL INFORMATION PURPOSES. RESILIENCY THE PODCAST CANNOT GUARANTEE THE ACCURACY OF ANY STATEMENTS FROM GUESTS OR THE SUFFICIENCY OF THE INFORMATION.
adbl_web_anon_alc_button_suppression_t1
No reviews yet